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* Wicked 2: For Good * November 28 * Livonia, MI
10th Annual Juip Family / FMBJ

Movie Fundraiser for FARA

Click here to purchase tickets, sponsorships, or donate
Let's cure FA!

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Our family was honored to create this video for
FARA's Energy Ball fundraiser.

It gives a glimpse into our life with Friedreich's Ataxia and shares the hope that FARA gives to our #FAmily.

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The kids' videos! Learn about FA from Jake & Claire.


​Jake & FA:
Three Years after Diagnosis


Three years after being diagnosed with Friedreich's Ataxia, Jake gives an update about how his life has changed.
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Jake & Friedreich's Ataxia

Our first video.
​Jake made this video to tell his friends about his diagnosis of FA.
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Claire & Friedreich's Ataxia

When Claire was diagnosed, she dug into genetics.  Learn more about FA as told by Claire.
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Heroes Among Us

We are so grateful to everyone who is working together to cure FA. Learn more about the mechanism of the disease and the target therapies that are being investigated.

The original videos: Jake & Claire talk about their diagnosis and genetics of FA.

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  • Home
  • Bob Hindelang Memorial
  • Raising Awareness
  • Research Volunteers
  • ClaireVideo
  • JakeVideo