WELCOME TO JUIP.NET!
  • Home
  • Bob Hindelang Memorial
  • Raising Awareness
  • Research Volunteers
  • ClaireVideo
  • JakeVideo

Click here to purchase tickets or sponsorships to the 
* Back to the Future * September 28 * Livonia, MI
9th Annual Juip Family / FMBJ

Drive-In Movie Fundraiser for FARA

​Let's #CureFA! 

    Sign up to be notified about our annual fundraiser for FARA:

Join the mailing list for our annual FARA fundraiser

Our family was honored to create this video for
FARA's Energy Ball fundraiser.

It gives a glimpse into our life with Friedreich's Ataxia and shares the hope that FARA gives to our #FAmily.

Picture

The kids' videos! Learn about FA from Jake & Claire.


​Jake & FA:
Three Years after Diagnosis


Three years after being diagnosed with Friedreich's Ataxia, Jake gives an update about how his life has changed.
Picture
Picture

Jake & Friedreich's Ataxia

Our first video.
​Jake made this video to tell his friends about his diagnosis of FA.
Picture

Claire & Friedreich's Ataxia

When Claire was diagnosed, she dug into genetics.  Learn more about FA as told by Claire.
Picture

Heroes Among Us

We are so grateful to everyone who is working together to cure FA. Learn more about the mechanism of the disease and the target therapies that are being investigated.

The original videos: Jake & Claire talk about their diagnosis and genetics of FA.

Powered by Create your own unique website with customizable templates.
  • Home
  • Bob Hindelang Memorial
  • Raising Awareness
  • Research Volunteers
  • ClaireVideo
  • JakeVideo